We can’t stop time. We can only slow time by doing what we love. Doing the things that make us feel alive. And I have never been more alive than when telling a story.

Available 12/3/21:

Bedtime Stories for the Living by
Jay Armstong

 

A regular dad. A rare brain disease. A chance to live forever. 

A cell phone’s ring interrupts the silence as Jay Armstrong sits in his high school classroom preparing for the year ahead. Something about the ring makes his stomach drop. It’s his doctor. 

The words, “diffuse cerebellar atrophy, a rare, degenerative brain disease” float through the speaker. All of Jay’s youthful dreams of being a writer rush back, flooding the twenty years he has spent teaching students how to appreciate novels, memoirs, and poetry. The care he put into teaching them how to write with clarity, insight, and humor, and how to dance at the prom. The bedtime stories he never told his children spin in his imagination. It will all die when he dies. 

Jay chooses to experience his condition as an inspiration here to teach him to appreciate the time he still has. He writes letters and stories to his three children about his failing voice, his impaired motor skills, and falling down on Christmas morning. Writing helps him cope with the illness and its symptoms. And so, he accepts the mission of writing more stories for them: the difference his father’s wink made at a critical moment of a baseball game, why they should take walks even in cruddy weather, and how he avoided having to explain what semen is for.

As his condition worsens, Jay’s faith in the power of storytelling deepens. His daily life is wildly different than he foresaw, and possibly shorter, but he can leave his children a legacy more valuable than any financial inheritance. He writes Bedtime Stories for the Living, an episodic memoir to show his children how to accept their limitations and find joy. The collection of tender, witty stories about fatherhood, persevering despite illness, and pursuing your dreams, demonstrates how love gives us the strength to face heartache with bravery and grace.

 

“It’s a unique experience to read a book that speaks directly to your heart. Bedtime Stories for the Living, accurately articulates the thoughts of any person living with a rare disease or other challenge in life and thus relates to the reader on a level that is not often experienced.  this book will speak to you."

-Kyle Bryant, spokesperson for the Friedreich's Ataxia Research Alliance and host of the Two Disabled Dudes podcast



“Humorous, heart-rending and sage, Bedtime Stories teaches us to be brave in despair, honest when we fail, and most of all, to wrench our dreams from the jaws of disappointment.”

-Blake Kilgore, Author of Leviathan

“Jay's stories are meant to leave a legacy to his children so that they may know the man-- and his journey of facing the unthinkable, a slow walk into the abyss. Jay taps into our soft spots of human kindness, empathy, vulnerability, and sometimes a little humor. What a Beautiful Book!”

-Michele Hill, educator and co-authored 100 No-nonsense Things All Teachers Should Stop Doing


Bedtime stories for the living


About

Jay

~~

A writer and a former award-winning high school English teacher. Despite being diagnosed with a rare neurological disease, that impairs his movement, balance, eyesight, and speech--Jay presses on. He lives in the suburbs of Philadelphia, Pennsylvania with his wife, their three kids, and their dog Maggie May. He makes dad jokes, keeps the house stocked with cereal, and will only accept a cordial invitation from Oprah to join her book club. You can also visit his weekly blog at writeonfighton.org.